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Self-Advocacy Web Site for People with Intellectual Disabilities

Self-Advocacy Online is an educational- and networking Web site for teens and adults with intellectual- and other developmental disabilities. Created by The Research and Training Center on Community Living, it is intended for people participating in organized self-advocacy groups.

The site contains three sections: a “Learning Center”; a search tool for finding self-advocacy groups; and “My Page” for within-site e-mail messages and discussion forums.

Site Registration

The site registration form has a few simple fields.  Fun, instructional videos explain each step.  The first video automatically pauses until activated by the user to indicate readiness for instructions about the next field.

To register, users are required to accept the site’s “Terms of Use Agreement”. While I understand protecting intellectual-property rights, and applaud protecting users’ privacy, the agreement is not written in language understandable by the site’s intended audience.  It could have been prefaced by a bulleted, plain-language summary of its principles.

Learning Center

The Learning Center has two modules, “Living a Healthy Life” and “Getting Organized”.  They are slide presentations combining text, pictures and voice narration.  Small chunks of content use simple analogies and examples.

Search Tool for Self-Advocacy Groups

The Self-Advocacy Group Search Tool can be used via a drop-down list of states, a Zip Code field, or an image map of the United States.  Contact- and other information is listed for each group.

Discussion Forums / Messaging

The “My Page” section, the only one that requires registration, has a list of friends and access to within-site messaging.  Discussion groups have a simple interface that makes it easy to create, to join, and to read/write messages within them.  At the time of this writing, there are low numbers of groups, users and messages.

Accessibility Highlights

Evaluation of a few pages using WebAIM’s WAVE revealed compliance with accessibility guidelines.  The site also has many accessibility- and usability features for people with intellectual disabilities.  Highlights:

Accessibility Problems

Overall Impression

Self-Advocacy Online, despite the minor problems listed above, is a wonderful demonstration of accessibility and usability for people with intellectual disabilities.  In particular, it is obvious that considerable instructional-design effort went into the modules of The Learning Center.

The subject chosen for the site is very important to people with intellectual disabilities; self advocacy has been a recurring topic in my interviews for The Clear Helper project. I hope additional funding is received to develop additional content for the Web site, to market it, and to help it become a thriving community.

Self-Advocacy Project Funding

The MacArthur Foundation – 2008 – – $72,000 – Digital Media & Learning Competition Award Recipient:

University of Minnesota, Minneapolis/St. Paul, MN

Self-Advocacy Online is an educational and networking website for teens and adults with intellectual and cognitive disabilities, targeted at those who participate in organized self-advocacy groups. In supporting greater networking, peer exchange, collaboration, and communication to a general public, Self Advocacy Online will extend the reach of and interaction among people with disabilities so that they can more effectively speak up for themselves and make their own decisions.

Retrieved from: http://digitallearning.macfound.org/site/apps/nlnet/content2.aspx?c=enJLKQNlFiG&b=3897211&content_id={F51C7F1C-A1AE-40AF-BBA7-DE9929CD1C38}&notoc=1

NEC, Active Voice Messaging Division – 2006 – $35,000

To The University of Minnesota Institute on Community Integration (ICI)  –  Minneapolis, MN

For Self-Advocacy Online (SAO), a research and development project to bridge the “digital divide” for persons with intellectual disability (ID) and related cognitive disability (RCD). The project will test, validate and recommend standards for accessible websites for persons with ID and RCD, as well as provide a national, maximally accessible website for self-advocates with ID and RCD that exemplifies the validated standards and provides needed content on self-advocacy. http://rtc.umn.edu and http://www.qualitymall.org

Retrieved from: Google cache of http://www.activevoice.com/news/pressreleases/pressReleaseDetails.aspx?PressID=38

Notes

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